Article published In:
Journal of Asian Pacific Communication: Online-First ArticlesUnearthing the disabling perplexities of a Filipino PLHIV online community on X’s #PLHIVDiaries as socially shared inquiry fostering pakikipagkapwa
Filipino People living with HIV (PLHIV) have used X, formerly Twitter, as an avenue to make sense of what it means
to live with HIV in the Philippines. However, big data analyses do not provide a comprehensive investigation of X as a community.
Grounded in the concepts of Alfonso’s (1992) socially shared inquiry (SSI), this paper
discusses how this discursive process of sense-making and sense-giving occurs in an X hashtag called #PLHIVDiaries through
analyzing and interpreting tweets (n = 1089) that narrate the daily experiences of Filipino PLHIV. This describes
how their different struggles are framed and reframed through SSI process which unravels disabling perplexities such as problem,
barrier, conflict, absence, dilemma, and error. Among the non-disabling frames that serve as a foil to disabling perplexities, we
identified a variety of tweets that contained testimonies, personal triumphant stories, and answers to problems that were endorsed
and authenticated by community members.
Keywords: PLHIV, HIV/AIDS, socially shared inquiry, community of practice,
pakikipagkapwa
Article outline
- Introduction
- Literature review
- Analytic framework
- Methodology
- Data gathering
- Ethical considerations
- Results and discussion
- Orgy of social, cultural, and systemic infections
- Problem
- Barrier
- Conflict
- Dilemma
- Absence
- Error
- Discursive process of SSI in #PLHIVDiaries
- #PLHIVDiaries as pakikipagkapwa
- Conclusion
- Note
-
References
Published online: 8 July 2024
https://doi.org/10.1075/japc.00108.gam
https://doi.org/10.1075/japc.00108.gam
References (38)
Ad Standards Council for Responsible
Advertising. (2019). Guidebook. Makati, Metro Manila; Ad Standards Council
Aguiling-Dalisay, G. H. (2013). Sikolohiyang
Pilipino sa Ugnayan ng Pahinungod: Pakikipagkapwa at pagbabangong-dangal ng mga
Pilipino. Daluyan: Journal ng Wikang
Filipino,
19
(2).
Ahmed, W., Bath, P. and Demartini, G. (2017). Chapter
4 Using Twitter as a Data Source: An Overview of Ethical, Legal, and Methodological
Challenges. In: Woodfield, K., (ed.) The
Ethics of Online Research. Advances in Research Ethics and Integrity
(2). Emerald, pp. 79–107. ISBN 978-1-78714-486-6.
Alfonso, H. C. (1992). On
the logic of socially shared inquiry: An examination of participatory research and related development efforts from a
communication process perspective [PhD
dissertation]. University of Pennsylvania.
Canete, J. J., & del Castillo, F. A. (2022). Pakikipagkapwa
(Fellowship): Towards an interfaith dialogue with the religious
others. Religions,
13
(5), 459.
Chirambo, L., Valeta, M., Banda Kamanga, T. M., & Nyondo-Mipando, A. L. (2019). Factors
influencing adherence to antiretroviral treatment among adults accessing care from private health facilities in
Malawi. BMC public
health,
19
(1), 1–11.
Crisostomo, S. (2019, September 2). Doh
conserves HIV meds amid shortage. [URL]. Retrieved January 13,
2023, from [URL]
DOH = Department of Health (2020). A
Briefer on the Philippine HIV Estimates. Retrieved October 1, 2022, from [URL]
Doyle, K. L., Woods, S. P., Morgan, E. E., Iudicello, J. E., Cameron, M. V., Gilbert, P. E., Beltran, J., & HIV
Neurobehavioral Research Program (HNRP)
Group (2016). Health-Related Decision-Making in HIV
Disease. Journal of clinical psychology in medical
settings,
23
(2), 135–146.
Elo, S., Kääriäinen, M., Kanste, O., Pölkki, T., Utriainen, K., & Kyngäs, H. (2014). Qualitative
Content Analysis: A Focus on Trustworthiness. SAGE
Open, 4(1).
Embate, J. M., Ordinario, M. C., & Batu, A. (2019). The
Kapwa in Compassion: Examining Compassionate Health Care for Violence Against Women (VAW) Victims Among PGH Health Care
Providers. In M. J. Dutta & D. B. Zapata (Eds.), Communicating
for Social Change: Meaning, Power, and
Resistance (pp. 87–108). Springer.
Fumaz, C. R., Munoz-Moreno, J. A., Moltó, J., Negredo, E., Ferrer, M. J., Sirera, G., Pérez-Alvarez, N., Gómez, G., Burger, D., & Clotet, B. (2005). Long-term
neuropsychiatric disorders on Efavirenz-based approaches. JAIDS Journal of Acquired Immune
Deficiency
Syndromes, 38(5), 560–565.
Gangcuangco, L. M. (2019). HIV
crisis in the Philippines: Urgent actions needed. The Lancet Public
Health, 4(2).
Guo, Y., & Goh, D. H. L. (2014). “I
Have AIDS”: Content analysis of postings in HIV/AIDS support group on a Chinese
microblog. Computers in Human
Behavior,
34
1, 219–226.
Labor, J. S., Samonte, C. J., & Bana. (2022). Othering
within the gay dating community? Tensions in gender identity representations between Filipino gays and the bakla in mobile
dating applications. Journal of Asian Pacific
Communication,
33
(2), 227–246.
Malik, A., Antonino, A., Khan, M. L., & Nieminen, M. (2021). Characterizing
HIV discussions and engagement on Twitter. Health and
Technology, 111, 1237–1245.
Maulsby, C. H., Ratnayake, A., Hesson, D., Mugavero, M. J., & Latkin, C. A. (2020). A
scoping review of employment and HIV. AIDS and
Behavior,
24
1, 2942–2955.
Miller, J. (2022). Religion
in the Philippines. Retrieved January 12, 2023, from [URL]
Mooney, A. (2005). Somebody
wants to be normal: an account of an HIV narrative. Medical
Humanities, 311, 72–80.
Neto, A. de O., & Júnior, K. R. de C. (2019). Internet and HIV/aids:
A virtual ethnography on Facebook. nterface - Comunicação, Saúde,
Educação, 231, e180580.
Odlum, M., Yoon, S., Broadwell, P., Brewer, R., & Kuang, D. (2018). How
Twitter can support the HIV/AIDS response to achieve the 2030 eradication goal: in-depth thematic analysis of World AIDS day
Tweets. JMIR public health and
surveillance,
4
(4), e10262.
O’Connor, C., & Joffe, H. (2020). Intercoder
Reliability in Qualitative Research: Debates and Practical Guidelines. International Journal of
Qualitative Methods, 191: 1–13.
Pretty, J. N. (1995). Participatory
learning for sustainable agriculture. World
development,
23
(8), 1247–1263.
Quilantang, M. I., Bermudez, A. N., & Operario, D. (2020). Reimagining
the future of HIV service implementation in the Philippines based on lessons from
covid-19. AIDS and
Behavior,
24
(11), 3003–3005.
Restar, A. J., Adia, A., Nazareno, J., Hernandez, L., Sandfort, T., Lurie, M., Cu-Uvin, S., & Operario, D. (2019). Barriers
and facilitators to uptake of condoms among Filipinx transgender women and cisgender men who have sex with men: A situated
socio-ecological perspective. Global Public
Health, 15(4), 520–531.
Reyes, J. (2015). Loób
and Kapwa: An Introduction to a Filipino Virtue Ethics. Asian
Philosophy, 25(2), 148–171.
Samuel, K. (2021). People
Living with HIV in the media: Irresponsible, Unhealthy, and
‘Other’. Retrieved October 1,
2022, from [URL]
Senate of the
Philippines. (2023). Country needs 10 doctors for every 10,000 Filipinos –
Tolentino. Retrieved December 1,
2023, from [URL]
Solis, C. U. (2023). Pakikipagkapwa-Tao
and Bayanihan Spirit in Community Pantries: Paul Ricoeur on Filipinos as Responsible Human
Beings. RELIGION AND SOCIAL COMMUNICATION Journal of
the, 1651.
Taggart, T., Grewe, M. E., Conserve, D. F., Gliwa, C., Roman Isler, M. (2015). Social
Media and HIV: A Systematic Review of Uses of Social Media in HIV Communication. J Med Internet
Res. 17(11), e248.
Townsend, L., & Wallace, C. (2016). Social
media research: A guide to ethics. The University of
Aberdeen. Retrieved October 1,
2022, from [URL]
Tuppal, C. P., Ninobla, M. M. G., Reñosa, M. D. C., Ruiz, M. G. D., Loresco, R. C., Tuppal, S. M. P., & Panes, I. I. (2019). Living
with HIV/AIDS among men having sex with men (MSM) in the Philippines: Internet ethnography of HIV life
stages. Journal of Global Health Reports, 31.
Turner, B. J. (2002). Adherence
to antiretroviral therapy by human immunodeficiency virus–infected patients. The Journal of
Infectious Diseases, 185(s2).
Villanueva, R. (2022, December 2). Nearly
13,000 Hiv cases logged this year. Philstar
Global. Retrieved January 3,
2023, from [URL]