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Article published In:
Pragmatics and Society
Vol. 12:2 (2021) ► pp.288–308

Autism spectrum disorder and language choice in Ghana

| University of Ghana
One of the most crucial decisions to make for parents of children with Autism in Ghana (just like for others in most bilingual and multilingual environments) is what language(s) to use with their children. This study was conducted to first investigate the state of Autism in Ghana and then to unravel the language choices that parents make for their children and the factors that influence the choices they make. Through interviews, the use of observation and questionnaires, members of Autism Action Ghana, a support group for parents with children on the spectrum, were studied as a Community of Practice, as well as using Bourdieu’s concept of Cultural Capital. Data analyzed both qualitatively and quantitatively revealed that Autism Spectrum Disorder (ASD) is still a generally unknown and misconceived condition that receives no major government attention, so that parents are left with finding very expensive and limited support for their children on their own. 77% of the 35 respondents use only English with their children because of the advice they receive from therapists, in addition to the fact that all therapies available are in English, the fear of further delaying speech in their non-verbal children should they use more than one language, and the belief that English has more currency and will take their children further in life as compared to their indigenous languages, among others. One of the implications of the choice of English is that the children will eventually become functionally monolingual in a multilingual country and thus will be left with no choice when it comes to language.
Keywords: autism, Ghana, community of practice, cultural capital, language choice, bilingualism
Article outline
  • 1.Introduction
    • 1.1Language and autism
    • 1.2Statement of the problem
    • 1.3Objectives of the study
    • 1.4Research questions
    • 1.5Significance of the study
  • 2.Theoretical approach
    • 2.1Community of practice
    • 2.2Bourdieu’s theory of cultural capital
  • 3.Methodology
    • 3.1Participants
    • 3.2Data collection
    • 3.3Data analysis
  • 4.Study findings and discussion
    • 4.1Research question 1: The state of ASD in Ghana
    • 4.2Research question 2: AAG as a community of practice
    • 4.3Research question 3: Languages spoken by parents and others with children on the spectrum
    • 4.4Research question 4: Factors responsible for the choice of language(s)
      • 4.4.1What are the reasons behind this choice? Why one language?
      • 4.4.2What are the reasons behind this choice? Why English?
  • 5.Summary and conclusion
  • Acknowledgments
  • References
Published online: 3 June 2021
DOI logo
https://doi.org/10.1075/ps.18058.orf
References (33)
References
American Psychiatric Association. 1994. Diagnostic and Statistical Manual of Mental Disorders (4th ed.). Washington: American Psychiatric Association.Google Scholar
Ansah, Gladys N. 2014. “Re-examining the Fluctuations in Language-in-Education Policies in Post-independence Ghana”. Multilingual Education. DOI logoGoogle Scholar
Bauder, Harald. 2006. Labor Movement: How Migration Regulates Labor Markets. New York: Oxford University Press. DOI logoGoogle Scholar
Bourdieu, Pierre. 1984. Distinction: A Social Critique of the Judgement of Taste. London: Routledge.Google Scholar
. 1986. “The Forms of Capital”. Handbook of Theory and Research for the Sociology of Capital. (J. G. Richardson, transl.). New York: Greenwood Press, 241–58.Google Scholar
Doheny, Kathleen. 2018. “Autism Cases on the Rise; Reason for Increase a Mystery”. (August, 2017). [URL]
Dolby, Nadine. 2000. “Race, National, State: Multiculturalism in Australia”. Arena Magazine 451: 48–51.Google Scholar
Dubé, Line, Anne Bourhis, and Jacob Real. 2005. “The Impact of Structuring Characteristics on the Launching of Virtual Communities of Practice.” Journal of Organizational Change Management 18 (2): 145–166. DOI logoGoogle Scholar
Dumais, Susan A. 2002. “Cultural Capital, Gender, and School Success: the Role of Habitus”. In Sociology of Education 75 (1): 44–68. DOI logoGoogle Scholar
Dyches, Tina T., Lynn K. Wilder, Richard R. Sudweeks, Festus E. Obiakor, and Bob Algozzine. 2004. “Multicultural Issues in Autism”. Journal of Autism and Developmental Disorders, 341: 211–222. DOI logoGoogle Scholar
Eckert, Penelope and Sally McConnell-Ginet. 1992. “Think Practically and Look Locally: Language and gender as community-based practice”. Annual Review of Anthropology 211:461–90. DOI logoGoogle Scholar
Emirbayer, Mustafa and Eva M. Williams. 2005. “Bourdieu and Social Work”. Social Service Review 79(4):689–725. DOI logoGoogle Scholar
Falco, Miriam. 2014. “Autism Rates now 1 in 68 U.S. Children: CDC”. [URL]
Feltmate, Krista and Elizabeth Kay-Raining Bird. 2008. “Language Learning in Four Bilingual Children with Down Syndrome: A Detailed Analysis of Vocabulary and Morphosyntax”. Canadian Journal of Speech-Language Pathology and Audiology, 321: 6–20.Google Scholar
Ferrer, Casesnoves and David Sankoff. 2004. “The Valencian Revival: Why Usage Lags Behind Competence”. Language in Society, 33 (1): 1–31. DOI logoGoogle Scholar
Hambly, Catherine and Eric Fombonne. 2011. “The Impact of Bilingual Environments on Language Development in Children with Autism Spectrum Disorders”. Journal of Autism and Developmental Disorders, 42(7):1342–52. DOI logoGoogle Scholar
Kjelgaard, Margaret and Helen Tager-Flusberg. 2001. “An Investigation of Language Impairment in Autism: Implications for Genetic Subgroups.” Language, Cognition and Neuroscience 16(2–3):287–308.Google Scholar
Kietzmann, Jan, Kirk Plangger, Ben Eaton, Kerstin Heilgenberg, Leyland Pitta, and Pierre Berthon. 2013. “Mobility at Work: A Typology of Mobile Communities of Practice and Contextual Ambidexterity”. Journal of Strategic Information Systems 3 (4): 282–297. DOI logoGoogle Scholar
Kurita, Hiroshi. 1985. Infantile Autism with Speech Loss before the Age of Thirty Months. Journal of the American Academy of Child Psychiatry 24(2):191–196. DOI logoGoogle Scholar
Lave, Jean and Etienne Wenger. 1991. Situated Learning: Legitimate Peripheral Participation. Cambridge and New York: Cambridge University Press. DOI logoGoogle Scholar
Lord, Catherine and Rhea Paul. 1997. Language and communication in autism. In D.J. Cohen & F.R. Volkmar (Eds.), Handbook of autism and pervasive development disorders, 2nd edition. New York: John Wiley & Sons.Google Scholar
McGill University. 2018. “Being Bilingual May Help Autistic Children: Study Suggests Bilingualism May Increase Cognitive Flexibility in Kids with Autism Spectrum Disorders (ASD)”. ScienceDaily. Retrieved May 3, 2018 from [URL]
Petersen, Jill M., Stefka H. Marinova-Todd, and Pat Mirenda. 2012. “Brief Report: An Exploratory Study of Lexical Skills in Bilingual Children with Autism Spectrum Disorder”. Journal of Autism and Developmental Disorders, 42(7): 1499–1503. DOI logoGoogle Scholar
Ramírez, Naj F. and Patricia K. Kuhl. 2016. Bilingual Language Learning in Children. [URL]
Reetzke, Rachel, Zou Xiaobing, Sheng Li, and Napoleon Katsos. 2015. “Communicative Development in Bilingually Exposed Chinese Children with Autism Spectrum Disorders” Journal of Speech, Language, and Hearing Research 581: 813–825. DOI logoGoogle Scholar
Stanton-Salazar, Ricardo and Stanford M. Dornbusch. 1995. “Social Capital and the Social Reproduction of Inequality: The Formation of Informational Networks among Mexican-Origin High School Students”. Sociology of Education 681: 116–135. DOI logoGoogle Scholar
Szatmari, Peter. 1998. Differential diagnosis of Asperger disorder. In E. Schopler, G. B. Mesibov, & L. J. Kunce (Eds.), Asperger syndrome or high-functioning autism?: 61–76. New York: Plenum Press. DOI logoGoogle Scholar
Valicenti-McDermott, Maria, Nancy Tarshis, Melissa Schouls, Molly Galdston, Kathryn Hottinger, Rosa Seijo, Lisa Shulman, and Shlomo Shinnar. 2013. “Language Differences between Monolingual English and Bilingual English-Spanish Young Children with Autism Spectrum Disorders”. Journal of Child Neurology 28(7): 945–948. DOI logoGoogle Scholar
Volkmar, Fred R. & Ami Klin. 1998. Asperger Syndrome and Nonverbal Learning Disabilities. In Eric Schopler, Gary B. Mesibov, Linda J. Kunce (eds.), Asperger Syndrome or High-Functioning Autism? New York: Plenum Press. DOI logoGoogle Scholar
Wenger, Etienne. 1998. Communities of Practice. Cambridge & New York: Cambridge University Press. DOI logoGoogle Scholar
Wenger, Etienne, Richard McDermott, and William M. Snyder. 2002. Cultivating Communities of Practice. Harvard: Harvard Business Press.Google Scholar
Wouter, Pinxten W. and John Lievens. 2014. “The Importance of Economic, Social and Cultural Capital in Understanding Health Inequalities: Using a Bourdieu-based Approach in Research on Physical and Mental Health Perceptions.” In Sociology of Health and Illness 36 (7):1095–1110. DOI logoGoogle Scholar
Yu, Betty. 2013. “Issues in Bilingualism and Heritage Language Maintenance: Perspectives of Minority-Language Mothers of Children with Autism Spectrum Disorders”. American Journal of Speech Language Pathology 22 (1): 10–24. DOI logoGoogle Scholar
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