Beyond neurological structures
Signs of Alzheimer’s disease and other possible cartographies
Although clinical criteria ultimately determine the pathological diagnosis of Alzheimer’s disease, ‘Alzheimer’s’ is also an ordinary sign, falling within a range of other possible signs, values and beliefs that define and are used to interpret dementia and mental diseases. While looking at talk-in-interaction in which two people diagnosed with Alzheimer’s interact with other people, this article tries to show that the way in which both lay and professional people interpret Alzheimer’s signs allows us to shed some light upon the core of the traditional and controversial dichotomy between normal and pathological. The interactions analyzed in this paper show how people oppose biomedical discourse, suggesting that other forms of interpreting aging and forgetfulness are possible. It has opened multiple cartographies or varied spheres of communicability influenced by the signs of Alzheimer’s.
References
Althusser, Louis
1971 “
Ideology and Ideological State Apparatuses.” In
Lenin and Philosophy and Other Essays, trans. by
B. Brewster, 127–186. New York: Monthly Review Press.
Andrews, Molly
1999 “
The Seductiveness of Agelessness.”
Ageing and Society 19 (3): 301–318.
Andrews, Molly
2000 “
Ageful and Proud.”
Ageing and Society 20 (6): 791–795.
Antaki, Charles, Hanneke Houtkoop-Steenstra, and Mark Rapley
2000 “
‘Brilliant. Next Question....’: High-Grade Assessment Sequences in the Completion of Interactional Units.”
Research on Language and Social Interaction 331: 235–262.
Atkinson, John M., and John Heritage
1984 Structures of Social Action. Cambridge:
Cambridge University Press.
Avery, Clare, and Charles Antaki
1997 “
Conversational Devices in Stories Turning on Appearance versus Reality.”
Text: Interdisciplinary Journal for the Study of Discourse 171: 1–23.
Ballenger, Jesse F
2006 “
The Biomedical Deconstruction of Senility and the Persistent Stigmatization of Old Age in the United States.” In
Thinking about Dementia: Culture, Loss, and the Anthropology of Senility, ed. by
Annette Leibing and
Lawrence Cohen, 106–122. New Brunswick, N.J.: Rutgers University Press.
Beach, Thomas G
1987 “
The History of Alzheimer’s Disease: Three Debates.”
Journal of the History of Medicine and Allied Sciences 42 (3): 327–349.
Berrios, German
1989 “
Non-cognitive Symptoms and the Diagnosis of Dementia. Historical and Clinical Aspects”.
British Journal of Psychiatry 1541: 11–16.
Berrios, German
1990 “
Alzheimer’s Disease: A Conceptual History.”
International Journal of Geriatric Psychiatry 51: 355–365.
Berrios, German E., Ivana S. Marková, and Nestor Girala
2000 “
Functional Memory Complaints.” In
Memory Disorders in Psychiatric Practice, ed. by
German E. Berrios and
John R. Hodges, 3–33. Cambridge: Cambridge University Press.
Briggs, Charles L
2005 “
Communicability, Racial Discourse, and Disease.”
Annual Review of Anthropology 341: 269–291.
Briggs, Charles L
2007 “
Anthropology, Interviewing, and Communicability in Contemporary Society.”
Current Anthropology 48 (4): 551–580.
Briggs, Charles L
2011a “
On Virtual Epidemics and the Mediatization of Public Health.”
Language and Communication 311: 217–228.
Briggs, Charles L
2011b “
Communicating Biosecurity.”
Medical Anthropology 30 (1): 6–29.
Briggs, Charles L., and Daniel Hallin
2007 “
Biocommunicability: The Neoliberal Subject and its Contradictions in News Coverage of Health Issues.”
Social Text 25 (4): 43–66.
Butler, Judith
1997 The Psychic Life of Power. Stanford, Calif.: Stanford University Press.
Bytheway, Bill
2000 “
Youthfulness and Agelessness: A Comment.”
Ageing and Society 20 (6): 781–789.
Bytheway, Bill
2005 “
Ageism and Age Categorization.”
Journal of Social Issues 61 (2): 361–374.
Castiel, David L
1999 A Medida do Possível: Saúde, Risco e Tecnobiociências. Rio de Janeiro: Editora Fiocruz.
Coupland, Justine, and Nikolas Coupland
1994 “
Old Age Doesn’t Come Alone: Discursive Representations of Health-in-Aging.”
International Journal of Aging & Human Development 39 (1): 81–95.
Coupland, Nikolas, Justine Coupland, and Howard Giles
1991 Language, Society and the Elderly. Oxford: Blackwell.
Cruz, Fernanda M
2008 Doença de Alzheimer, Linguagem e Interação. Ph.D. dissertation. Campinas, SP: Campinas State University.
Drew, Paul, and John Heritage
(eds) 1992 Talk at Work: Interaction in Institutional Settings. Cambridge: Cambridge University Press.
Duchan, Judith Felson, and Danna Kovarsky
(eds) 2005 Diagnosis as Cultural Practice. Berlin: Mouton de Gruyter.
Folstein, Marshal F., Susan E. Folstein, and Paul Mchugh
1975 “
Mini Mental State. A Practical Method for Grading the Cognitive State of Patients for the Clinician.”
Journal of Psychiatric Research 121: 189–98.
Foucault, Michel
1954 Maladie Mentale et Psychologie. Paris: Presses Universitaires de France.
Foucault, Michel
1984a Histoire de la Sexualité: l’Usage des Plaisirs. Paris: Gallimard.
Foucault, Michel
1984b Histoire de la Sexualité: le Souci de Soi. Paris: Gallimard.
Goodwin, Charles
1981 Conversational Organization: Interaction between Speakers and Hearers. New York: Academic Press.
Graham, Janice E
2006 “
Diagnosing Dementia and Clinical Data as Cultural Text.” In
Thinking about Dementia: Culture, Loss, and the Anthropology of Senility, ed. by
Annette Leibing and
Lawrence Cohen, 80–105. New Brunswick, N.J.: Rutgers University Press.
Graham, Janice E., Kenneth Rockwood, B. Lynn Beattie, Robin Eastwood, Serge Gauthier,
Holly Tuokko, and Ian McDowell
1997 “
Prevalence and Severity of Cognitive Impairment with and without Dementia in Elderly Population.”
The Lancet 3491: 1793–1796.
Graham, Janice E., Arnold B. Mitnitski, Alexander J. Mogilner, and Kenneth Rockwood
1999 “
The Dynamics of Cognitive Aging: Distinguishing Functional Age and Disease from Chronological Age in a Population.”
American Journal of Epidemiology 150 (10): 1045–1054.
Gubrium, Jaber F
1986 Old-timers and Alzheimer’s: The Descriptive Organization of Senility. Greenwich, Conn.: JAI Press.
Hanks, William F
1989 “
Text and Textuality.”
Annual Review of Anthropology 181: 95–127.
Heath, Christian
1992 “
The Delivery and Reception of Diagnosis in the General Practice Consultation.” In
Talk at Work: Interaction in Institutional Settings, ed. by
Paul Drew and
John Heritage, 235–267. Cambridge: Cambridge University Press.
Helman, Cecil G
2005 “
Cultural Aspects of Time and Ageing: Time is not the Same in Every Culture and Every Circumstance; Our Views of Ageing also Differ.”
European Molecular Biology Organization Special Issue 61: 54–58.
Holstein, Martha
1997 “
Alzheimer’s Disease and Senile Dementia, 1885–1920: An Interpretive History of Disease Negotiation.”
Journal of Aging Studies 111: 1–13.
Houtkoop-Steenstra, Hanneke
1996 “
Probing Behavior in Semi-standardized Survey Interviews.”
Quality and Quantity 301: 205–230.
Houtkoop-Steenstra, Hanneke
2000 Interaction and the Standardized Survey Interview: The Living Questionnaire. Cambridge: Cambridge University Press.
Knorr-Cetina, Karin
1999 Epistemic Cultures: How the Sciences Make Knowledge. Cambridge, Mass.: Harvard University Press.
Leibing, Annette
2001 “
O Homem Sozinho numa Estação: a Doença de Alzheimer e as Práticas do Esquecimento no Brasil.” In
Devorando o Tempo: Brasil, um País sem Memória, ed. by
Annette Leibing and
Sibylee Benninghoff Luhl, 77–89. São Paulo: Mandarim.
Leibing, Annette
2006 “
Divided Gazes: Alzheimer’s Disease, the Person within, and Death in Life.” In
Thinking about Dementia: Culture, Loss, and the Anthropology of Senility, ed. by
Annette Leibing and
Lawrence Cohen, 240–268. New Brunswick, N.J.: Rutgers University Press.
Leibing, Annette, and Lawrence Cohen
(eds) 2006 Thinking about Dementia: Culture, Loss, and the Anthropology of Senility. New Brunswick, N.J.: Rutgers University Press.
Lock, Margareth, Janalyn Prest, and Stephanie Lloyd
2006 “
Genetic Susceptibility and Alzheimer’s Disease: The Penetrance and Uptake of Genetic Knowledge.” In
Thinking about Dementia: Culture, Loss, and the Anthropology of Senility, ed. by
Annette Leibing and
Lawrence Cohen, 123–156. New Brunswick, N.J.: Rutgers University Press.
Marlaire, Courtney L., and Douglas W. Maynard
1990 “
Standardized Testing as an Interactional Phenomenon.”
Sociology of Education 631: 83–101.
Maynard, Douglas, and Courtney L. Marlaire
1992 “
Good Reasons for Bad Testing Performance: The Interactional Substrate of Educational Testing.”
Qualitative Sociology 151: 177–202.
Maynard, Douglas W
1992 “
On Clinicians Co-implicating Recipients in the Delivery of Diagnostic News.” In
Talk at Work: Interaction in Institutional Settings, ed. by
Paul Drew and
John Heritage, 331–358. Cambridge: Cambridge University Press.
Mondada, Lorenza
2005 “
L’Analyse de Corpus dans la Perspective de la Linguistique Interactionnelle: des Analyses de Cas Singuliers aux Analyses de Collections.” In
Sémantique et Corpus, ed. by
Anne Condamine, 76–108. Paris: Hermès.
Ortega, Francisco
2009 “
The Cerebral Subject and the Challenge of Neurodiversity.”
BioSocieties 41: 425–445.
Paoletti, Isabella
1998 Being an Older Woman: A Study in the Social Production of Identity. Mahwah, N.J.: Lawrence Erlbaum Associates.
Peräkylä, Anssi
1998 “
Authority and Accountability: The Delivery of Diagnosis in Primary Health Care.”
Social Psychology Quarterly 611: 301–320.
Rabinow, Paul
2003 Anthropos Today: Reflections on Modern Equipment. Princeton, N.J.: Princeton University Press.
Rose, Nikolas
2003 “
Neurochemical Selves.”
Society 41 (1): 46–59.
Rose, Nikolas
2006 The Politics of Life Itself: Biomedicine, Power, and Subjectivity in the Twenty-First Century. Princeton, N.J.: Princeton University Press.
Sacks, Harvey
1972 “
An Initial Investigation of the Usability of Conversational Materials for Doing Sociology.” In
Studies in Social Interaction, ed. by
David Sudnow, 31–74. New York: Free Press.
Sacks, Harvey
1992 Lectures on Conversation. Vols. 1 & 21. Oxford: Blackwell.
Sacks, Harvey, Emanuel A. Schegloff, and Gail Jefferson
1974 “
A Simplest Systematics for the Organization of Turn-Taking for Conversation.”
Language 50 (4): 696–735.
Schaeffer, Nora Cate, and Douglas W. Maynard
2005 “
From Paradigm to Prototype and Back Again: Interactive Aspects of Cognitive Processing in Standardized Survey Interviews.” In
Conversation and Cognition, ed. by
Hedwig te Molder and
Jonathan Potter, 114–133.
Cambridge: Cambridge University Press.
Schegloff, Emanuel A
1972 “
Notes on a Conversational Practice: Formulating Place.” In
Studies in Social Interaction, ed. by
David Sudnow, 75–119. New York: Free Press.
Schegloff, Emanuel A
2003 “
Conversation Analysis and ‘Communication Disorders’.” In
Conversation and Brain Damage, ed. by
Charles Goodwin, 21–55. New York: Oxford University Press.
Shapiro, Joseph P
1993 No Pity: People with Disabilities Forging a New Civil Rights Movement. New York: Random House.
Shapiro, Joseph P
2006 “Autism Movement Seeks Acceptance, Not Cures.”
June 26.
[URL]
Shenk, Denna
2005 “
There was an Old Woman: Maintenance of Identity by People with Alzheimer’s Dementia.” In
Alzheimer Talk, Text and Context: Enhancing Communication, ed. by
Davis H. Boyd, 3–17. New York: Palgrave Macmillan.
Smith, André, and B. Lynn Beattie
2001 “
Disclosing a Diagnosis of Alzheimer’s Disease: Patients and Families’ Experiences.”
Canadian Journal of Neurological Sciences 28 (1): 567–571.
Swartz, R.H., S.E. Black, and P. St. George-Hyslop
1999 “
Apolipoprotein E and Alzheimer’s Disease: A Genetic, Molecular and Neuroimaging Review.”
Canadian Journal of Neurological Sciences 261: 77–88.
Ten Have, Paul
1999 Doing Conversation Analysis. A Practical Guide. London: Sage Publications.
Ten Have, Paul
2001 “
Lay Diagnosis in Interaction.”
Text: Interdisciplinary Journal for the Study of Discourse 2 (2): 251–260.
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2022.
Entre ilhas fabulosas: etnografia, autismo e demência em relação.
Horizontes Antropológicos 28:64
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